Thursday, February 25, 2010

life

Here I sit on a Thursday night, watching "Kitchen Nightmares" and looking at a floor lamp that has a busted joint so the light isn't where it needs to be and am thinking what I should do to fix it.

Thought about checking ChatRoulette just for the heck of it but thought I might end up hooked and that's one thing I don't need in my life!

Last night I was sitting watching American Idol with my dog laying on my right arm and I wanted to put the foot up on my recliner so without knocking her off the chair I bent my arm down behind her body to push the button. It wasn't a "bend" that was awkward or anything - just my arm sliding down to the buttons and they are easy to push.  While I was pushing the button my right forearm went into spasm and locked!!  I couldn't believe it!  I had to get Andy to get the dog off my lap so I could try to get the spasm to let go.  It took about 3 minutes before it finally released.  Now, the reason that I mention this is one thing and one thing only.  It is starting to do what my left arm did before my whole left side got buggered up.  Now it's advancing to the right side.  Not a good sign.  Need to get a diagnosis and not just pain meds to help deal with the pain (although I'm not knocking the pain meds - they have been a life saver literally!).  But it's scary when you think you have  one good side and suddenly that side starts doing exactly what the left side did as it was getting to where it is today.  This is something I'm gonna have to discuss with my pain management doc and see what he suggests.  I have an appt with my orthopedic surgeon and I will mention to him the fact that I have symptoms moving to the right side now and see what he says and will also mention it to (as I've said) to the PM doc after that visit. I know I'm going to be told nerve damage but why is it moving to the right when everything was so severely on the left?  Hopefully I'll find out.

Monday, February 22, 2010

Doctor's Appointment!

Had my doc appointment today just over three weeks from when I had an EGD scope done.  The news was good for a change! Praise the Lord!!  THANK YOU JESUS!!!!


The only 2 things about all this that bothers me is this is 1) he told me in the recovery room that I had an infection of H.pyori (sp) that could either be a peptic ulcer or cancer.  He also told me that my Barrett's was inflamed (I got pictures of one of my Barrett's spots AND a picture from inside, down, and around to look at the Nissen that they did in the hopes of healing up the Barrett's.  THAT picture scared the holy hell out of me because he was telling me what normal looks like and then showed me when I had the Barrett's flare up so bad a pencil wouldn't fit in my esophagus and in the picture (1 sheet)  there was something that looked "normal" and something that looked all wrinkled and scarred and I thought it was cancer because he didn't tell me WHAT it was - showed me my inflamed tissue then grabbed another sheet of my Barrett's to show me what THOSE looked like and I am just knowing it's cancer that I'm looking at because it is no where near nice and neat and all that compared to the others.  And THEN he tells me that is the Nissen that they did in 2005.  Good thing the room I was in didn't have any windows.  My exhale of relief would have probably blown them out!  2) In the office he's talking about my Barrett's and how he thinks we should be able to go every 2 years and not every year and all that and then asks if I have any questions.  I'm like yeah what about the infection, the H. pyori or whatever it's called.  He said "What infection?"  I was SOOOOOOOOOO glad my DIL went with me because she said "Oh yeah you did, you told us she had an infection at the entrance to her stomach and that it was that H name and that you said you took a biopsy to see which problem it actually was.  And now you don't know anything about this infection?"  I have to admit, I was ticked off - I had worried for 3 friggin weeks knowing my time was up for getting the cancer and he didn't know what I was talking about.  He had to get the nurse helper to go get the "glow"(sp) report and THEN told me I was negative for everything except a new Barrett's spot.  I coulda decked him for that.  I know he has a lot of patients and he can't remember them all but....sheesh.

It's something I have to live with hanging over me like the sword of Damocles.  It's not a matter of "if" but "when".  So yes, I worry - sometimes a lot, sometimes it's just a twitch in my mind.  But never goes away completely.  Something new will happen and I'll sometimes think "is this it"?  Most of the time, no.  But on occasion it kicks me in the butt.  More talk on this later - I'm tired and wanna go watch a guy go on a killing rampage.  Dunno which one but I'll figure it out b4 too long.

Saturday, February 20, 2010

All confused but who cares

Guess this is where I'm gonna stay, at least until I get annoyed and go to the other one. I have no clue what I'm doing and this is supposed to be super easy :) What's that tell you about this blonde?

Ok, I don't know what I'm doing but since I couldn't seem to get the other working right

I am now working on a different one. Called Dojer's Daily Drama which sounds more appropriate from the way things are going for me tonite! Maybe between the 2 of them I can get it right!

Ok, now I'm irritated!

I actually have a follower - but when I go to their profile FROM MY SITE and try to send them a message, my blog comes up and says "Do you want to follow Jodi?" Um, hello? That's me!! What the heck??

And so it begins

Ok, first off, welcome to anyone who has decided to follow my blog. As of yet, I have absolutely no idea what I'm going to write about. Maybe I will write about my struggle to get disability from a country that admits that my condition is severe but not severe enough because I can still bathe myself and will take the time and effort to at least appear somewhat presentable. Or maybe I will write on the daily anxieties that I deal with while dealing with ongoing pain from a multitude of different body parts. Or maybe it'll deal with my upcoming doctor's appointment where I find out whether I have a "simple" case of having a peptic ulcer or stomach cancer (I'm betting on the first because of the meds that I take). Or maybe it'll be a post of something I find interesting or a funny email that I get, or one of those boring "25 Things You Didn't Know About Me" emails. Who knows?

Either way, if you stick with me, thanks! If you don't, well, your loss not mine :)